We are an industry that shares messages and today we wanted to share a really important request for help from someone in our industry.
Emma Macey, who works at Atomic 212, faced every parent’s worst nightmare when her 10-year-old’s foot infection turned into CRPS.
The “cruel and painful disease for which there is no explanation” was the subject of the recent Netflix documentary Take Care of Maya.
Whilst Macey said the family had been working closely with the Royal Children’s Hospital, they had “exhausted all the treatment options available”, Macey said in a LinkedIn post.
After speaking to family and specialists, the family decided the best course of action was to take Bella to a specialist CRPS clinic overseas that can provide a more intensive treatment.
They have now set up a GoFundMe page and are asking for donations so that Bella can get the help that she desperately needs. You can donate HERE.
In the GoFundMe page, the family wrote:
“Bella, our vibrant and spirited 10-year-old, was full of life and joy. Bella’s passions include reading, cooking, Judo, gymnastics, swimming and learning. Anyone that knows Bella or has crossed paths with her knows what a positive and exceptional human she is”.
“A month ago everything changed, she was struck down with an excruciatingly painful illness called CRPS. Since her diagnosis, she has been battling excruciating pain that affects her daily activities and steals away her childhood. Bella’s pain has meant she has lost mobility in her right foot and leg, right up to her groin. She is now bedridden or in a wheelchair if she needs to get around”.
“CRPS is a complex neurological disorder that causes severe, persistent pain, often triggered by minor injuries or surgeries. It has brought Bella’s life to a standstill, leaving her unable to move, tolerate any touch or sensation to her affected leg and foot, attend school, play with friends, or even wear pants because the touch of the material is too much to bear”.
They went on to say that they had found a clinic in the US that was far better equipped to deal with Bella’s complex needs.
“This is where your generosity becomes a lifeline for Bella. We have set up this GoFundMe campaign to help raise the funds necessary to get her to the Spero Clinic and provide her with the specialized treatment she urgently requires. The funds will go directly toward medical expenses, including consultations, diagnostic tests, treatments, medications, and any associated travel costs”.
“Every donation, no matter the size, will make a significant impact on Bella’s journey towards recovery. Your support will not only alleviate the financial burden on our family but will also restore hope and strength to Bella and remind her that she is not alone in this fight. Together, we can help Bella overcome CRPS and pave the way for a brighter future”.
“Please share Bella’s story and this campaign with your network, as spreading the word is just as valuable as making a contribution. Follow her progress through our updates, and witness first-hand the positive impact your kindness and support will have on her life”.
